Bhawna’s Story on how she dealt with Fibromatosis
I am Bhawna, 39 years old and a Desmoid Fibromatosis patient. It all started in early 2018 when I started feeling pain in my right ………
personal-experience
Cancer Story of Hunny Kapoor
A Synovial Sarcoma Survivor and an Amputee aged 25 years, Hi, I am Hunny Kapoor, a blogger just like you. Yet what differentiates all of ………
Ewing’s Warrior Amit Gupta
My name is Amit Gupta and I am from Delhi. I was diagnosed with Ewing’s Sarcoma in 2017 on my right foot in the 4th toe. ………
Cancer Story of Rashi Kapoor, President
I am Rashi Kapoor, 38 years old , a synovial sarcoma survivor.Sarcoma is a very rare type of cancer.As per. Survey , it happens to ………
Epithelioid Hemangioendothelioma by Ashish Rana
Hi all, myself Ashish Rana a caregiver to my Mother Kaushalya (46 years).In June 2015 My mother had pain in her upper abdominal region for ………
Fibromatosis Story of Priyanka khachi
I am Priyanka Khachi, 27 years old a fibromatosis patient. I used to live in a small village in Himachal Pradesh. I was 16 years ………
What is the dilemma faced by patients in handling rare diseases?
In a country like India where the majority of people believe in using homemade remedies to treat problems like fever, headache, etc, they fail to ………
