Hi all, myself Ashish Rana a caregiver to my Mother Kaushalya (46 years).In June 2015 My mother had pain in her upper abdominal region for several days then we visited Medanta Hospital, Gurgaon and the doctor suggested a CT scan of the abdomen which is suggestive of multiple lesions in both lobes of the liver. Then we went for Liver Biopsy and were diagnosed with Epithelioid Hemangioendothelioma which is a type of sarcoma, a very rare type of cancer that happens to one in a million. After this tough phase of life, we decided to move further on a positive note to fight from it without any negative thoughts and started with Thalidomide 50mg and Celecoxib 100mg.
After taking these medicines for 3 months my mother’s condition improved as there was no pain for 3 months but MRI suggestive of the increased size of liver lesion. Then, We rushed to several hospitals i.e. Aiims, Ganga Ram, Rajiv Gandhi, Max, ILBS, Apollo for opinion and came to know about Sarcoma Specialist Dr. Sameer Rastogi at AIIMS, Sarcoma Medical Oncology Centre and Started on Pazopanib 800mg/day from June 2016. After taking Pazopanib for several days my mother developed Hand Foot syndrome, elevated liver function test, and high BP so the dose was lowered to 400mg per day as pazopanib 800mg is not tolerated by every Indian patient. Then we went for PET Scan(Sept’16) after taking medicine for 3 months which shows Stable Disease.
Now, She is on Pazopanib 400mg/day plus Dr. Sameer added Propanolol 40mg/day(also used as hypertension medicine) because of recent evidence of this medicine in this disease and tolerating well and we visit Dr. Sameer in his OPD regularly to keep monitoring her health. Being a housewife she is living a healthy life without focusing on her disease and keeping herself busy with her work without skipping yoga, meditation which helps a lot in healing disease and her latest PET Scan(Feb’2018) suggests Stable Disease.
