Organised 122 th #desmoid#supportgroup meeting to address concerns of desmoid patients. It was joined by 50 patients. We are grateful to Dr Vikas Garg for giving an enriching presentation to educate all newly diagnosed patients and help them by addressing their concerns.
Many desmoid patients shared their concerns and their ways of dealing with side effects caused due to sorafenib, pazopanib and chemotherapy.
The session was moderated by desmoid patient Priyanka khanchi.
Hand foot syndrome, High BP , hair fall , weakness , menstrual disturbance in females , stress , anxiety were the top most concerns of desmoid patients.