227th Desmoid Support Group Meeting Recap – Sachin Sarcoma Society
🗓 Date: Sunday, 8th September 2024
🕓 Time: 4:00 PM
💻 Platform: Zoom
👨⚕ Guest Speaker: Dr. Akshay Tiwari
Senior Director & Head, Musculoskeletal Oncology, Max Super Speciality Hospital, New Delhi
Topic: The Role of Surgery in Desmoid Tumors
In this educational and motivational session during Desmoid Awareness Month, Dr. Akshay Tiwari provided in-depth knowledge about the role of surgery in desmoid tumor treatment. Highlights included:
✅ Active Surveillance: Understanding when this approach is best.
✅ Desmoid Tumors: They are not cancer, but a multidisciplinary team is needed for treatment.
✅ Surgery Guidelines: Surgery is not usually the first option. Dr. Tiwari discussed when it’s necessary and when medical therapy can help.
✅ Living with Desmoid Tumors: Moving from disease eradication to managing and living with the condition.
✅ Mental Health Focus: Counseling plays a critical role in managing patient anxiety and stress.
The session was not just educational but also deeply motivational, with desmoid patients sharing their personal stories:
- Seema Gupta encouraged everyone to stay present to handle anxiety.
- Manish Gupta shared how self-love and gratitude can shift focus.
- Pragya Mallik shared her daily wisdom and personal feelings to boost morale.
- Priyanka Khachi emphasized how distracting the mind with activities like yoga and meditation helps relieve anxiety.
- Diptishree Dey and Sarita Sharma also shared their empowering journeys.
Together, the session emphasized the importance of mental health, self-care, and community support.
