In honor of *Desmoid Awareness Month, the *Sachin Sarcoma Society hosted its 226th Desmoid Support Group Meeting on *Sunday, 1st September 2024. The theme was *“Hope and Healing – Inspiring Stories of Desmoid Patients,” where four incredible speakers shared their journeys of strength and resilience. The session was highly motivational and filled with positivity. 💪
Our guest speakers:
✨ Dr. Jigna Garasia – Desmoid survivor, gynecologist, and author
✨ Priyanka Khachi – Desmoid patient and lawyer
✨ Pragya Mallik – Desmoid patient, actor, and model
✨ Pranjali Thite – Desmoid patient and chartered accountant
These brave individuals shared their experiences with Desmoid tumors, discussing their struggles, the importance of spirituality, positive thinking, and how they have found strength through their journeys. The session was attended by 60 patients who interacted with each other, fostering a strong sense of community. This meeting was a true reflection of hope, healing, and perseverance.
Key takeaways:
- Dr. Jigna Garasia emphasized the power of affirmations, connecting with nature, and finding happiness in what you love.
- Priyanka Khachi highlighted the importance of acceptance, counting blessings, and never comparing yourself to others.
- Pranjali Thite shared her practice of gratitude, spirituality, and yoga as tools for coping with the side effects of Sorafenib, such as hand-foot syndrome.
- Pragya Mallik spoke about using positive affirmations and the mental resilience required when facing physical challenges like hair loss.
Common concerns of Desmoid patients, especially those on Sorafenib:
- High blood pressure
- Hand-foot syndrome
- Pain
- Hair loss
- In some female patients, menstrual disturbances
Special moments:
- Kushagra, a Desmoid patient, shared a beautiful poem to boost the morale of all the patients present.
- Priyanka Khachi mesmerized the audience with her soulful rendition of the bhajan Nirvan Shatkam, soothing everyone’s minds.
A huge thank you to our amazing speakers, participants, and supporters who continue to make these meetings a source of strength for all. Together, we build a community of support and healing. 💙
📅 Stay tuned for more events as we continue to spread awareness and hope throughout Desmoid Awareness Month.
